Day 5, Day 6, Home – the bumper bullet-pointed edition

Day 5

  • Up at 5.30 for a toilet run. Transfers getting easier. Which is not true at all we’re just getting used to the hell that is transfers.
  • Back to bed. 
  • I sleep. No idea what Oscar does. Up at 7.30, breakfast. 
  • Not sure what we do for a few hours until Chef and all the boys arrive.
  • Hang out all afternoon as a family, complete with tantrums and whinging and tears and teasing and ohmygod nothing has changed but everything has changed all at once. 
  • Oscar’s teacher and aide come to visit with a massive (purple) box full of treats, story books, activity books, a card signed by everyone in class, cards from individual class members, a present from one girl in his class of a little Star Wars soft figurine because she knows how much Oscar loves Star Wars and thought it was handsome, just like Oscar.
  • I get all teary at the cafe where we meet them (in the hospital complex) and am once again blown away by the beautiful people in our world. 
  • More toilet transfers. 
  • We move beds in the ward as some of the kids who have been on weekend leave are coming back. I lose my bed.
Day 6
  • A 4am toilet run.
  • A 5.30 toilet run for which I tell Oscar to buzz for the nurse. Feel dreadful for the nanosecond before I fall back to sleep.
  • Horrendous night due to sleeping on yoga mat on floor – wasn’t worth sleeping in parents room due to Oscar’s anxiety at the mere mention of it.
  • Drag myself awake at 7am.
  • A morning of wait wait wait as Oscar would say.
  • The OT comes – we have a significant issue as to how we’re going to shower Oscar at home. Ongoing discussions, she goes to investigate possible solutions. 
  • Have I mentioned how incredibly amazing every member of staff has been?
  • Chef, Felix and Grover arrive
  • Felix has a rare day off from school because its his birthday and Oscar is coming home from school and normally I never allow that kind of thing but at the moment I am too tired to care and feel like the kid needs some slack cut. 
  • Solutions are found. We finally get the all clear to come home. 
  • We come home.
  • I have told myself when we get home I’m going to sit on the lounge.
  • Instead I do random things like take bags of clothes to the charity bin around the corner and take the recycling out to the garbage bin.
  • I KNOW
  • Felix has requested a birthday dinner of tacos. So be it.
  • We have our first toilet transfer. I have absolutely no idea how we’re going to do it when only one adult is around. 
  • Some of you mentioned a hoist. It’s not that simple I’m afraid. But thanks for the suggestion. 
  • We rebuilt Oscar’s old bed in his bedroom (after removing all the Lego and bookshelf) as it is at the right height for a transfer. 
  • I have balled my eyes out twice- once at the end of dinner when there was just so much mayhem and chatter and chaos I thought my head was going to explode. Felix just hugged me.
  • The second time was out in the garage when Felix came out to see what we were doing (looking for the screws to reassemble said bed) and I thanked him for being so freaking amazing about having his birthday somewhat overshadowed by Oscar’s homecoming and how he didn’t complain or resent Oscar for it and that we were so proud of him and loved him so much and he was such an awesome kid and sob sob sobbity sob. As did Felix. I made him cry. On his birthday. 
  • I just feel so bad I didn’t get to make him a cake. 
  • Anyway, we’re home. 
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  • Bianca

    Welcome home! Hope the transfers get better and there are less tears.

  • Paola

    I am sure they were tears of joy and kudos to him, it show feelings.
    Happy birthday dear Felix.

  • blackbird

    I'll shut up about the hoist now.

  • jac

    Happy birthday Felix!
    Have you perhaps thought about a hoist?

  • Badger

    Happy birthday Felix, you darling boy. Please move to America in 15 years and marry my daughter.

    And OMG, that thing about intending to sit on the lounge but instead doing the recycling and whatnot? Because you've been away from home for days and while you SHOULD rest you almost sort of don't want to? Reason #487 why Kim + Badger = soulmates.

  • Eleanor

    You made it through this stage, you bloody legend!!!!!

    Love ya, E xxxx

  • sooz

    Another step closer dude, nothing at all helpful else to say. I know for you it feels like you've been in a cage for years with this, but from over here this whole thing seems to be going very fast – like just a few days ago it was morphine and bed pans and now HOME! I hope it starts to speed up for you too. And you can tell Felix that even from over here I can tell he's being a completely amazing and mature bloke already *high five*

  • trash

    the doing crazy recycling thing makes complete sense to me, therein lies some sense of 'normality'.

    Man, if I was closer I would bring a birthday cake for Felix and a mahoosive 'you rock' cake and a LARGE bottle of wine or several for you.

  • Anonymous

    Happy Birthday to your dear Felix!

    How is it possible that it's Monday already?


  • peskypixies

    you are home !!!

    just breath and it will all fall into place.

    lots of hugs

  • Jodie

    Home ….so quickly…
    Happy Birthday Felix wonder-brother!

  • Duyvken

    More love from me to all the superstars at all consuming.

  • Stomper Girl

    Happy Birthday to Felix. What a good boy. He won't mind if his cake is a bit late.