Not Quasimodo

Eyes on the prize

 

Of course after the diagnosis I am now on Google Doctor OVERLOAD.

 

Firstly, what can I tell you about finally having a name to how fucked I’ve felt. How fucked? This fucked:

Exhaustion

No, not just tired, or really tired, but pure exhaustion you can not push through. The kind where even on a trip to the supermarket down the road you find your eyes drooping. The kind where sitting on the lounge ensures you will be asleep sitting up before you can even clock what you’re watching. Exhaustion which hits you from nowhere – you can quite easily have had a great night’s sleep. The only thing I can liken it to is first trimester pregnancy but even that is not a PATCH on this.

Brain Fog

People’s names, clarity of thought, forgetting what you’re doing MIDWAY through doing it, WORDS. I will see letters that are IN the word I am thinking of but the word will be juuust out of reach, even with my brain on tippy toes it can’t.quite.get.there. Someone will ask you something and you see them talking but can’t hear what they’re saying. It’s like that Gary Larkin cartoon where you only clock in on key words – your name, chocolate, champagne, let me make dinner.

Sweating

Head sweats like no other. I will be standing still, doing very little and then it will be upon me. This was what actually made me go to the GP as I was convinced I was going through premature menopause. Seriously, like rivers of sweat pouring off me. It made me utter ‘Oh Victor, you are very unattractive man,’ repeatedly:

(3:25 for the skit, phrase uttered right at the very end 5:12 mark. BUT see Michelle in the first skit? My doppelganger. Infact, Magda is my doppelganger, period.)

Light-headed

Not dizzy, just the whole room suddenly swirling around me like a poor imitation of The Matrix. I can be sitting, standing, lying down, it doesn’t matter.

The shakes and racing heart

Again, it doesn’t matter when or where, suddenly I’ll have the shakes and/or my heart will start racing like I’m running for my life.

Depression

This is the kicker because I think we all know the longstanding relationship I have with all things depression. Has my depression been because of thyroid dysfunction? (who knows) Has it exacerbated it? (absolutely)

Poo stuff

Just not right. That’s all you need want to know.

 

SO much of this stuff I have felt on and off for years, YEARS. I always put it down to being unfit and being fat. In trawling through thyroid websites and information today I somehow chanced upon something talking about self-compassion. This:

• What are the consequences of being so hard on yourself? Does it make you more motivated and happy, or discouraged and depressed?
• How do you think you would feel if you could truly love and accept yourself exactly as you are? Does this possibility scare you, give you hope, or both?

and this (my bolding):

Most of us live in cultures that do not emphasize self-compassion, quite the opposite.  We’re told that we’re being lazy and self-indulgent if we don’t harshly criticize ourselves.  We’re told that no matter how hard we try, our best just isn’t good enough.  It’s time for something different.  We can all benefit by learning to be more self-compassionate, and now is the perfect time to start.

Yesterday I fixated on this one paragraph in the literature on Hashimoto’s Disease the endo had given me. It came under the heading What are the risks associated with Hashimoto’s disease?

Birth defects: babies born to women with untreated hypothyroidism have a higher risk of being stillborn, premature and spending extra time in the intensive care nursery. They may also have lower IQ later in life due to underdevelopment of the brain while in the womb.

You can see where that ended can’t you. I mean, the endo reckons this goiter has been there, growing for up to the last 10 years, what’s a handful more? And cue self flagellation of the grandest kind. I was a mean mother to Oscar yesterday. Yelling and short tempered and mean. I wasn’t liking myself very much for it, hating myself even so why not stick the boot in over something no-one will ever be able to answer?

 

Your thyroid is located in your neck and makes two kinds of thyroid hormones. Those hormones (T3 and T4) regulate how the body uses and stores energy. They help the brain, heart, muscles and other organs work properly. They are kind of VERY IMPORTANT.

I must say, I think I’m grieving a little bit. How much has this impacted on my life, on who I am, without me knowing it, with me putting it down to being fat or not good enough?

I’m sad and angry and scared to be perfectly honest and I don’t really know where to go and what to do from here.

Oh sure, I’ll take my thyroid meds and see my endo again in six weeks and see what the thyroid is doing and what the blood sugars are doing and so on and so forth but then what? what else? and why?

I am acutely aware of the role and impact stress is having on my health and my life but am at an impasse as to what to do about it. Chef and I learnt today that the bank had rejected our business plan to open allconsuming:food. That is the first most of you have heard of it. I am disappointed but no where near as much as I am relieved. Oh it would have been successful with the Mighty Chef behind the burners and me as the floor wench and the vice around my very being would have eased as the bank balance grew but it was not the answer. There is a Plan B which I think is far more realistic and as such I am more excited about that as a plan but I am wandering aren’t I.

In fact, I’m not sure where this is going. That I’m going to be kinder to myself? To try not to stress so much? Or to try not to let the stress affect me as deeply? I don’t know. One day at a time I guess.

 

Onward.

 

 

 

 

 

It’s my goiter isn’t it

So yesterday I went to the endocrinologist. Here’s a career that would be tricky. You wouldn’t be able to walk down the street without looking at people going, ‘goiter, goiter, enlarged thyroid, over-active, under-active GOITER!’ It’d be EXHAUSTING.

First up, the guy is a legend. Apparently he is the God of Thyroid. As he said to me, ‘I write the textbooks,’ but without one grain of arrogance or inflated sense of self-importance. In fact there were a few occasions he muttered, ‘I must be getting old’. Funny brainiac.

But he did come out with some pearlers that I’ve been reeling off ever since.

Him: See that, right around your middle?
Me: Every single day
Him: The Americans call that “belly fat”
Me: Straight shooters those Americans.

Him: You’re a fat storer not a fat burner

I think I’m going to get that put on a business card. FAT STORER.

Basically my thyroid is totally kaput. It is officially a goiter at about three times the size it should be.

Him: Didn’t you notice your neck getting thicker
Me: Yeah, I just thought it was because I was fat
Him: I think you’re being a bit hard on yourself
Me: People say that to me a lot.

It’s going to take more than a year for it to go down/away.

I have what is called Hashimoto’s Disease.

Note to self: HASHimoto NOT QUASImodo.

I’m also ‘insulin resistent’. Don’t worry my “HOLY FUCK DIABETES” alarm bells were clanging nice and loud.

But at least I now know what’s going on and to not give up on the whole exercising, not drinking, eating well caper.

Still, so boring.

Onward

New Favourite

Yesterday I spent 2+ hours getting to and from my long-anticipated (2 months) appointment with the endocrinologist. The news is not awesome but not a surprise either. More on that later.

I got home just in time to immediately start the whole dinner, bath, homework, bed bedlam.

This morning involved a 5:17 wake up from Oscar with a wet bed. In turn Grover woke early, as did Jasper and it all went to hell in a handbasket with Grover refusing breakfast of toast with (homemade) raspberry jam only to then have an Unleash-The-Hounds calibre meltdown when I gave it to Jasper instead.

I dropped Jasper at school for dance at 8 and scoured the school for his “lost” $60 jumper – “lost” in that it was “apparently” on his lunchbox at dance last Thursday and then not there when dance was over. I didn’t find the jumper.

Got home to then hustle Oscar into the car for a trip to the dentist.

I really don’t need to say any more than that do I. DENTIST. I haven’t been to one in more than five years because of my fear of them but also because of JUST HOW BAD they make me feel about my dental hygiene and that of my children. Today was no different, even though we were at the dentist at the Cerebral Palsy Alliance. It’s not their fault, I am hypersensitive to such things.

He will require a general and work done – general cleaning and four fillings, one of which may need a root canal or extraction.

Then we had to go and have a full head x-ray.

So yeah, I’m feeling under the pump people. I’m trying to breath in the white light and breath out the black smoke. I’m trying to not dwell on the bad and stressful and focus on the fun and also the things I can do (when not at specialists and dentists and x-rays and dropping kids at school a million miles away) to ease the bad and stressful. I am really trying.

I’d seen references to this over the last week or so but never clicked through. Blackbird linked to it today and well, I always do as Blackbird instructs or informs. She is my Jedi Master.

I needed this today, now. I BALLED my eyes out watching it – the fun, the love, the pure joy of it. I just wish the world for these two – I mean, what legends! But it did something else for me today. It reminded me (as I do every day, don’t worry) HARD that all that really matters in this world is love. Love, family and friends. That’s it. It’s that simple. And well, I have those three things in buckets.

ONWARD!

 

The Voice Australia and Keith Urban’s Undies

Last night I was here:

contain excitement contain excitement contain excitement

If you don’t know what this is then you’re dead to me. Move along. Nothing more for you here.

(OH OK, for those cultural elites among us, or perhaps just those who don’t watch tele (weirdos) these are the chairs from The Voice, possibly the best reality talent show EVER.)

There were some MAJOR revelations for me being ON SET as opposed to ON MY LOUNGE.

1. Seal and his creepy pedo snake eyes are no where NEAR as creepy, pedo or snakey in real life. In fact, in real life he’s this huge physical presence. AND he was wearing the most supple red leather boots. It took a LOT of self control not to fling myself at his feet and stroke the preshusssness.

There's no place like home, there's no place like home

2. I’ve never been a fan of Australia’s answer to Celine Dion, Delta Goodrem but I haven’t been one of the Haters either. Now? TOTAL CONVERT. My GOD that woman can sing. She has chops on her that bring on involuntary goosebumps and raise the roof. Absolutely incredible.

Also – the ONLY judge on the night to stay back and meet with the fans. Joel could not get out of there quick enough and Seal was not far behind him.

Ridiculous fairy princess outfit but what a voice

3. The host is some vanilla white bread English guy. He was funny and good at what he does but I still have no idea who he is and struggle to remember his name. Darren? Darin? Derwood?

Cute and good at his job. Still can't remember his name.

4. DEVO – Keith had some big dealio show on in the States that had been locked in months before The Voice got underway so wasn’t there. BUT, being the consummate professional he was hooked up via satellite for the whole show – which on his timezone had him up from 1ish to 4.30ish in the morning. FANGIRLING.

my face smoosh plan? FOILED.

Also, we got to see his undies.

KEITH’SUNDIESKEITH’SUNDIESKEITH’SUNDIES

(Photo via Helen Razer’s razor wit on Just B)

5. All of the contestants are great singers, that stands to reason. But ON SET, the difference between great and HOLY FUCKING GOD YOU ARE A SUPERSTAR is far more obvious that when watching on the tele. Chris and Greg knocked it out of the park in terms of performance, but Fatai and Karise? In a league completely unto their own.

Fatai is all of SIXTEEN and came out dressed as the human tampon but my LORDY BE that girl can sing. It affects the oxygen in the room. Truly.

A harp and a smoke machine = a HIT

Karise was up last and apart from being dressed in upholstery with Morticia hair and clearly being a bit nervous again, she alters the oxygen in the room. It’s incredible, truly it is.

6. The salmon female shorts tuxedo? Just as bad in real life (thank GOD she is a contender).

EyeSORE

7. It was like I was coming home. Tell me it doesn’t look like I belong there every.single.week. I need some sort of job on set. STAT.

Missed my calling

The hugest shout-out to the mighty Di (@MsDovic) who had tickets and asked me along. We had an absolute blast. Next time we’re taking WAY more snacks and a six pack of Cruisers.

Goddesses in attendance

 

ONWARD!

Recollections: primary school

I adored my primary school, a little local suburban number I would walk to and from each day. I had my best friend Belinda who was outrageously beautiful and otherwise just ran with the pack. Apart from my nameless kindy teacher, I remember all my teachers: Mrs Rafferty, Mrs Bramhall, Mrs Miller and Mr Eagleton.

My entry to school was marked by massive panic that I couldn’t write my name. When i recounted this to mum recently she was agog, AGOG, telling me I was writing sentences by the time I got to school. Of course I was. Probably reading Enid Blyton on my own too.

There was one standout incident for me in this year in which David Stockler took my pencil sharpener and would not return it despite my many requests. I kept putting my hand up and calling the teacher’s name, to which she would reply ‘in a minute’ or ‘when I’ve finished helping __’ and so on. Eventually I’d had a gutful so stood up ON my desk, stamped my foot and declared in a loud clear voice, also known as yelling, ‘David Stockler has my pencil sharpener and I want it back NOW.’ As the oxygen drained from the room I turned to see an ominous figure filling the door frame and casting a long shadow, the Principal of the entire school, Mr Chapman.

Mr Chapman's eyebrow inspiration

I was promptly taken outside and given a talking to by this imposing figure, the contents of which I have absolutely no recollection except being acutely aware of his eyebrows. Like tentacles sprouting from his forehead, they were simultaneously terrifying and mesmerising.

In 1st grade it was Mrs Rafftery, a young waif of a thing I was besotted with. She had this hairdo that I admired so much I tried to replicate it at my June Daly-Watkins debacle. It was a bum part, then straight and then, dear GOD, curly (permed perhaps?) at the ends. In hindsight perhaps the poor woman was just growing out a bad idea.

That was the year David Stockler and I got in trouble for talking during a test and that I had to take home the cuisanaire rods because my mathematical ineptitude was already quite evident. I remember being so embarrassed about this I tried to sneak them into my bag before anyone could see, only to drop them on the verandah and watch them go sailing down between the cracks in the floorboards to the dirt below.

OH THE HUMANITY

This all happened just as the twins (David and Michael I think) were returning from an appointment with the eye doctor. Michael was wearing glasses which, in 1979, was the schoolyard equivalent to a duck wearing a target during hunting season. You could see he was miserable. In a bid to avoid the classroom and thereby hold off the FOUR-EYES taunts for just a bit longer he went under the building with me to collect up all those rotten rods.

The following year I had Mrs Bramhall who had taught my brother two years earlier. She announced this and her love for my brother (“such a good boy”) on my first day and promptly told me she was going to call me Kimberly. I pointed out to her that Kimberly was not my name, a fact she disputed for some time. She viewed me with great suspicion, that if my brother had been the good one then I had to be the bad, but a relentless campaign of flowers from our garden eventually won her over. That was the year I got a boil on my knee, a scar I still bear.

I cheated in a spelling test because I knew Saturday was not spelt with an “er” but for the life of me couldn’t think of what did go in that space. I “accidentally” dropped my pencil and on picking it up looked over Belinda’s shoulder and copied. OH the chagrin. It was also the year we made White Christmas (was there anything better than the last few weeks of school when it was all Christmas craft and carols?) and I got to stir the bowl more than anyone else because I did it properly. I remember how upset Belinda was about this and how tickled I was by it.

Mrs Miller was a complete trip in Year 3. An old school (read: elderly) teacher who would make us do maths and English tests every Friday afternoon while she sat at her desk with a small transistor radio playing the races. Isn’t it funny, that’s about all I remember of her. The Osti dresses, the hot curler set hairdo and that’s about it. I was going to say she was very quietly spoken but then thought, no she was quite fierce so perhaps she was a yeller? Again, the memory denies.

And then there was Mr Eagleton. I remember the first day of school in 1982 and how he was standing up on the verandah next to our Principal Mr Chapman, he of the incredible eyebrows.

This great murmur was running through all of the students gathered on the hot asphalt to find out their class for the year. Who was this new teacher? OH the excitement! He was as tall as a lamppost with a sandy brown beard and blue eyes. And as it transpired he was my 4th grade teacher.

Fourth grade was an interesting year. The realisation that I wanted to be a writer, that Christopher ___ really did have anger management issues, that Andrew ___ really was an annoying little git and that Alison ___ was a show pony with a show mother to boot. It was also the year I consciously wet my pants because seriously, I wanted the free undies you got from the school nurse. What I got was a pair of scratchy ill-fitting gender neutral undies which were grossly uncomfortable. Lesson learnt.

Mr Eagleton was an absolute force. He had come from a country school in Nyngan, a town which had just experienced the worst flooding in its recorded history. We thought that was fabulously romantic. He announced that now we were in 4th grade we could write with pens rather than pencils except me. I had broken my right arm roller skating during the summer holidays and I was not allowed to use a pen until it was heeled. I was enraged at this gross injustice as quite frankly, my left handed writing was really quite neat. Still, wait I did. Once cast-free my love of the kilometrico knew no bounds.

He announced that we were not children anymore and therefore Charlie would now be called Charles and Jamie James. Charlie was pretty naughty and I recall Mr Eagleton picking him up by his ears on one occasion. God knows how many times that poor kid got the cane. Ahh, the good old days of public education.

It was the era of the assignment which involved sheets of art paper (you know the stuff, rough on one side, shiny on the other) sticky-taped together and then concertinaed. If you owned The Lettering Book, only available through Book Club, you were SORTED. Those assignments were all written solely off information learnt from National Geographic and out of encyclopaedias. Talk about the age of innocence.

And then it came to an end. Fifth grade was a year when many of us moved to one of the private schools in the area and I was one of them. It was on our last day that James cornered me in the wet area off our classroom and declared his love for me. I was incredulous. He loved ME? Oh my. But then I was cranky. WHY leave it to now, why not tell me MONTHS ago? Now, now it was too late. Heart, officially broken.

 

Onward!