Two important questions

I understand exactly where you are coming from. My eldest daughter had severe multiple disabilities from difficulties at birth. It left her severely brain damaged, with uncontrolled epilepsy, floppy, without any communications skills, cortical blindness, she was eventually fed through a gastro tube in her stomach.

But she was a smiley little girl, who I adored with all my heart.

Through out her life I had to keep a sense of humour, because life does go on, and there is too much to deal with to be depressed, overwhelmed or not to cope.

We had similiar thought processes in our decision making too. How does this effect Kaela and her quality of life. We had “family policies” in relation to decision making. ie: it is our policy that Kaela isn’t permitted to travel in a vehicle without a family member or friend in addition to the cab driver etc.

I didn’t understand the phrase “living grief” until she died three years ago. Now I have realised that there was initial grief, living grief and the final grief and anger when her life was cut short at 16 years of age due to all of her compounding health problems.

Good on you for speaking to everyone about Oscar and your family. Keep your sense of humour. I wish you and your family well.
GourmetGetaways recently posted..YBR – November 2010

well said.
nice to *hear* you.

hugs
Pixie recently posted..What a day!!!

Oh I should have mentioned how awesome you looked in the video. Much better than the photo my brother took at the nuffnang christmas party.

You did so well in putting together that video, well done
GourmetGetaways recently posted..Sweet Pastry

How cute are you ?

I feel I can ‘hear’ you better now, can ‘hear’ you in all those posts past.

And.
for some reason,
despite all those words, now, NOW .. I find you human.

You know, not that I thought you were previously a monster, or a transformer, or a zombie or anything..

xx
Lea recently posted..The Baby Gift- Melbourne Family Photographer